The PKD Foundation's Advocacy Center

 

Welcome to the PKD Foundation’s Government Relations and Advocacy Center. Our mission is to ensure your voice is heard by elected officials across all levels of government, from Capitol Hill to your local city hall. We work with elected officials to raise awareness of PKD and push for policies that will advance PKD research and benefit PKD patients and their families. Join our efforts to:



Increase federal PKD research funding

 

Keep PKD listed in the Peer-Reviewed Medical Research Program

 

Expand Medicare coverage of vital meds for kidney transplant patients

 

Pass a National PKD Awareness Week Resolution in the U.S. Senate

 

Enact the Genetic Information Non-Discrimination Act ! (DONE! Learn what happens next)

 

 

The PKD Foundation is a strictly nonpartisan organization that does not support or oppose individual office holders, political parties or candidates.

 

Advocacy Spotlight

 

National Institutes of Health

The National Institutes of Health (NIH), a part of the U.S. Health and Human Services Department, is the primary Federal agency for conducting and supporting medical research, including PKD research. The NIH provides financial support to researchers throughout the world.
Learn More

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