The PKD Foundation's Advocacy Center

Welcome to the PKD Foundation’s Government Relations and Advocacy Center. Our mission is to ensure your voice is heard by elected officials across all levels of government, from Capitol Hill to your local city hall. We work with elected officials to raise awareness of PKD and to support policies that will advance PKD research and benefit PKD patients and their families.

Your advocacy can help cure PKD. We achieved a major victory in 2008, with the signing into law of the Genetic Information Non-Discrimination Act (GINA). Find out more about this important legislation and learn what happens next here.

Learn about our new and updated 2009 legislative priorities to:

• Advance PKD research at the NIH
• Keep PKD listed in the Peer-Reviewed Medical Research Program
• Create a PKD research program in the Congressionally Directed Medical Research Program
• Expand Medicare coverage of vital meds for kidney transplant patients
• Increase the rate of kidney donation
• Pass a National PKD Awareness Week Resolution in the U.S. Senate