Washington, D.C.’s, first major snowstorm of the year couldn’t deter more than 77 people from 22 states from participating in the 2009 PKD Champions United on the Hill. Advocates met with more than 100 Congressional offices to talk about research funding for PKD and policies to help patients and families affected by one of the world’s most prevalent, life-threatening genetic diseases.

During the event, advocates learned about the importance of advocacy, how to successfully lobby Congressional offices, and heard from American Enterprise Institute resident scholar Dr. Sally Satel about proposed organ donation legislation. U.S. Sen. Robert Bennett (R-UT) addressed the advocates as one of the 2008 Congressional Leadership Award winners, as well as representatives from U.S. Rep. Debbie Wasserman Schultz (D-FL), the other 2008 award winner.

PKD advocates also applauded West Texas Chapter Coordinator Teresa Andrus, as she was honored as the first ever PKD Foundation Advocate of the Year, an award that will be given annually to one outstanding advocate for his or her work to raise awareness of PKD with elected officials.

“My experience in Washington D.C. was probably the most important and enlightening moment of my life,” said New York advocate Alfred Vaca. “To work with PKD advocates from all over the country in Capitol Hill was amazing.  I felt empowered by my efforts in the Capitol, and I am thirsty for more.”

The 2010 PKD Champions United on the Hill will be March 1-2 at the Four Points Sheraton. Registration will open during the PKD Foundations National Convention weekend in late June.